Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Wednesday, July 15

A Trip to the Lake, with a Hospital Detour

A few weeks ago, we headed north to spend a fun weekend with friends at the lake.  With much anticipation, we bought life jackets, prepped the kids for several hours in the car, and packed everything up.  I was super excited about getting out of the house for a few days.  Sometimes it's nice to just get out for a bit, you know?

We arrived late on a Thursday night but, on vacation, the adults stayed up late.  Because we could. :-)

Despite periodic cloudiness, we spent much of Friday and Saturday in the water.  Beth, Luke, and Jack became pretty confident in the water, although after hearing about "alligator gar" Luke was pretty nervous about getting back in!  We did a little fishing in the evenings and enjoyed hanging out, building friendships and making memories.  I can't remember the last time I enjoyed myself so much, being silly with the kids, watching Ryan have so much fun with them, floating in the water, laughing, and feeling very carefree.




 




 


We had a fun Saturday night in which Luke felt it necessary to stand and dance on the outdoor bar while eating.  (Anything goes at the lake!)  Early on Sunday morning Beth woke up me saying her foot hurt.  I had no idea what to tell her at 4 am, so I tucked her back into bed and told her we'd look at it tomorrow.  The next morning she had what looked like an infected cut on the top of her toe, so we put on some neosporin and a bandaid then went to mass.  She was very lethargic during mass, and afterward I took this photo and texted it to my brother, Dr. Michael.

  

Doesn't look to bad with the bandaid on, but he said it was "streaking" up her leg and we should go to get it checked out.  After a quick lunch, and after figuring out some logistics (we had been planning to go home after mass), Ryan dropped Beth and me off at an urgent care and drove back to the lake house to pack us up.  Beth was feeling pretty rotten at the urgent care, I posted this photo on instagram and asked for prayers.
 
The PA who saw us at the urgent care was on the fence about what to do.  He thought about sending us home with a prescription antibiotic but asked if he could send a photo of Beth's toe and leg to a local ER doctor.  By now the streaking had traveled up to the top of her thigh (it had been at her ankle before mass) and my mama intuition told me something was going on.  I consented to having the photo sent, and the ER doctor said she wanted us to come in for an IV antibiotic.

Our sweet friends agreed to watch Luke, Jack, and Caeli for us so Ryan could come take us to the ER.  He picked us up and we went to the hospital that the urgent care recommended- being in a strange city I was at the mercy of their recommendation.  After they got us into a room, we had several doctors come in and out to check on Beth.  The first was nice, but the second doctor, who was the pediatric doctor, didn't handle things well.  He shocked us by saying Beth needed to stay for two to four days, and that this was "serious stuff" and she could lose her toe.  He said this in front of her- not okay!  Her diagnosis was cellulitis- blood poisoning in the old days.  They wanted to keep her on IV antibiotics for at least 48 hours until the blood cultures came back negative, confirming that she didn't have a blood infection.  

 

Beth was a nervous wreck about having the IV put into her arm.  My poor baby was feeling bad, sort of delirious with fever that kept getting higher each time they checked it, and not in a place to really rationalize the necessity of an IV.  I laid down on the bed next to her and braided her hair.  We talked about her favorite saints, the meaning of redemptive suffering, and the importance of being brave. The years I'd spend building up her trust and confidence paid off on this day.  I was able to confidently remind her of the trust we've built, the control I let her have over her decisions and her body.  I let her choose her clothing and hair, respect her time, and honor her autonomy.  I reminded her that I wouldn't MAKE her do anything that I didn't think she absolutely had to do, and this was an instance in which she HAD to do something she didn't want to do.  I didn't make her do it.  She trusted me and consented on her own.  And to me, that meant the world.

She was brave.  Even sick, exhausted, not understanding, and hurting. 

 

It seemed like it took forever for them to bring the antibiotics in, then transfer us to her room in the pediatric unit.  Charlie brought food for us because the hospital wasn't confident that they could feed us a gluten-free diet.  (On another note- even after requesting a gluten-free meal, the hospital sent a regular gluten-filled dinner that night, which really made us lose confidence.  There was a lot of miscommunication, or perhaps lack of any communication at all, which was very disappointing.)

After discussions, Ryan and I decided he'd spend the nights with her and I'd drive back to the house to stay with the other kids.  I thought Caeli would do better with me there at nights and I felt so confident that Ryan would make sure Beth would receive the best possible care.  After a round or two of antibiotics, Beth started to feel better and she and Ryan watched movies, played games, took silly pictures, called people on the phone, drew pictures, and probably did all sorts of other cutting up.


She looked back to her old self by the time I arrived on Monday.  I brought the other kids so they could see her (Luke had cried on Sunday night when I told him Beth wasn't coming home that night) and after a short visit, Ryan took them back to the house for the afternoon while I stayed with Beth. Beth also had some other visitors that day!  Grandma and Grandpa drove up to see her and bring her some goodies, and our friends also brought their family up to see Beth too!  Other than the IV in her arm (she was more annoyed with it than anything- it didn't hurt anymore) she acted like her old silly self!



That night Luke and I texted Beth a goodnight picture.  I think she and Ryan had already gone to bed though!


Back at the lake house, life was back to normal- just without Beth and Ryan.  The kids still woke up early and had to be fed.  Everyone missed Beth and there was definitely a cloud hanging over everyone's heads as we knew she was gone.  I was taking phone calls from doctors and well-meaning friends and family.  It was chaotic, but there were some beautiful moments too, like an early-morning lake-side breakfast with this beauty.


And listening in on a conversation with these big kids who were discussing the existence and creation of God, and trying to ponder how He was, is, and always will be. These children are amazing.


We heard on Monday night that Beth might be able to leave on Tuesday morning, if the results of her blood culture were negative.  We were excited to hear the news that she might be out so soon but we were also concerned about the incoming tropical storm!  We weren't sure what time she'd be released, how long the process would take, or when the storm would hit... We decided to play it by ear.

I was really feeling the pressure of extending our stay for so long!  We were generously invited to visit for a long weekend (late Thursday night through Sunday morning) and had already over-extended our welcome to Tuesday- and now we were having to delay our departure another day due to potential bad weather!  Our hosts were so generous, and if they ever felt like we were staying too long or getting frustrated with our presence then they never let us know!  They were nothing but gracious and helpful and understanding of everything we were dealing with, and the fact that we had their home to basically crash (and sometimes trash!) for almost a week seemed like it was no problem for them.  I am so very thankful for that.  I know it's hard to travel and stay in someone else's home (we have so many weird food demands!) and I know what it's like to have someone stay over for maybe a day or two too long.  It's hard to have someone else in your home sometimes.  But I never felt pressured to leave or felt unwelcome.  They were amazing to us.

Our friends Charlie and Andrea were also absolute life-savers.  At the first sign of concern they were asking what they could do to help, and I had complete trust and faith that they meant it and that they'd be totally capable of handling our little ones.  It made a world of a difference because I didn't have to worry about Luke, Jack, or Caeli at all. They went our of their way so many times, and did so cheerfully and prayed with us along the way.  Charlie brought us supplies in the hospital and no doubt encouraged Ryan. Andrea shared my mama worries, got angry with me when I was angry, reassured me and validated my feelings, solicited prayers, gave me hope and confidence, and celebrated with me when we brought her back.


Beth was released on Tuesday afternoon and we enjoyed a celebratory dinner tonight while everyone partied.  The other kids planned a surprise party and gave her gifts and cards, and there was much rejoicing all around.  We planned to take off the following morning and I think we were all pretty exhausted, so we hit the bed early that night and came home the next morning.

Beth had to complete 8 full days of a nasty oral antibiotic, which we mixed with chocolate milk and she chugged it through a straw.  She despised it but she did it!  She wore her hospital bracelets for a few days, I think as a reminder of a great personal victory.  

After reflection, I feel like if this had happened at our home, it would have been much more difficult for us.  We were able to rely on our friends so heavily, and for that I am eternally grateful, because this was such a stressful two-day experience.  If we'd have been home we would have had to carted all the kids around, or arranged to drop them off somewhere and all of that would have added another element of stress to the situation.  We were so thankful for their support, and so thankful to our hosts for understanding our difficult situation!  

A month later, as the medical bills come rolling in, we still run into people we haven't seen lately and they ask how she's doing, and it seems like it happened forever ago.  So many people were praying for her,  and for that I am also so grateful.  I was so worried about sepsis.  About her losing her toe.  And of course she's just fine, everyone probably knew she would be- we were told this is a common childhood illness after all!  But when it's your baby, it's hard to see that far ahead into the future.  All glory to God, author of life and in whose will we find our peace!

Monday, April 2

Chicken Pox!

Bethie G. got the chicken pox!  She started with a fever on Monday, March 19 and broke out with her spots on the next day.  She was seriously itchy for only a couple of days and then after that it's been pretty easy for her.  I found the best "medicine" was distraction, luckily we had some beautiful weather so we spent a lot of time outside riding bikes and we kept on going with her schoolwork because she wanted to.  She really felt fine the entire time which sort of surprised me!  I also used pure lavender oil to stop the itching and gave her some watered-down lavender oil in a spray bottle for her to use whenever she wanted.  She took lots of showers and had a few oatmeal baths (gluten-free oatmeal steeped in a pillow case!).  I also gave her some children's Claritin for her first two nights because she wasn't able to sleep, but other than that we just let it run its course.  I am happy she will have a natural immunity to it because contracting chicken pox as an older teen/woman can potentially cause fertility issues and I don't want her to have to deal with that.  Right now she has a few scabs left (today marks three weeks since her fever) but I'm certain this is the end of it.  The boys haven't gotten sick yet but I don't see how they won't get it! Hopefully their cases will be as easy as Beth's was!

Thursday, June 18

Bad news

Yesterday Beth had a cold. She woke up with a runny nose and she was breathing kind of hard, and had a little fever of 100.4 or under. She got worse as the day went on, and at 4:00 I decided to bring her to the pediatrician. After examining her, he decided to admit her to the hospital to be monitored, since her breathing was so labored and she wasn't getting 100% oxygen. Last night she had a chest X-ray, which shows she most likely has pneumonia, and given that she's not really responding to the antibiotics it's most likely viral (isn't it always?). So she'll probably spend a couple of nights in the hospital, just to be on the safe side. Last night I stayed with her and right now Ryan is with her while I'm home with Luke. I'm not sure how we'll do this but I'm trying to pump as much milk as possible (which is pretty impossible for me) so that Luke can stay home and away from the hospital. This came on so quickly, and she wasn't really even acting too sick other than her lack of appetite and unusual tiredness- but she was still in a happy mood! Please pray for her quick recovery!

Friday, May 29

Too late

Luke's got it too. Went back to the ped today because I thought he had thrush in his mouth, but it was just the Hand, Foot and Mouth business. It's on his toes and in his mouth, in addition to his yeast rash, but (at this point) he doesn't have a fever. At least I don't have to try to keep them apart anymore!

Thursday, May 28

Sick AGAIN

I'm so tired of the never-ending sickness around here. It feels like Beth's been sick since she turned two, at least more often than not. After the antibiotics for her ear infection, her runny nose and cough never quite went away, and the antibiotics gave her a yeast rash. Now that we got that under control, yesterday she developed some blister-looking things on her feet and knees, on top of a new fever, so I brought her in today and sure enough she has an enterovirus that causes hand, foot and mouth disease. It's only on her feet and knees, at this point, but she's just so miserable and sickly. My poor girl. And, it's nice and contagious so now I have to work hard to keep her and Luke separated through the weekend. Wish me luck.

Wednesday, May 20

Random happenings

It's funny to me that all throughout my days, I think, "I need to blog about this!" or something similar. Blogging has become a way of life for me! But, when I sit down at my computer, I cannot for the life of me remember what I wanted to write about. So, here are some random thoughts that are coming to me in no particular order:

1. I took Beth to the doctor today because she's been sick off and on since last Friday. Yesterday evening she told me her ear hurt, so I brought her in to have that checked. Sure enough, she has an ear infection! As sad as I am that she's hurting, I thought it was kind of cool that she was able to communicate to me that she was in pain!

2. I averaged $75/an hour on my last job- so awesome! Everyone wants a close-up shot of my teeth, this is as good as it's going to get:


3. We're having some sleep issues with Luke- again? Still? I don't think they ever got better, it's just that some weeks are better than others. We're at a breaking point though, so I've got a couple books to look through to remind myself of how we handled this with Beth. The basic story is we can get Luke to sleep, but he won't stay asleep. And that's enough to drive any parent nuts when it's been happening for about every night for four months!

4. We haven't gone to the pool yet, though I have our passes, since Beth's been sick. I was hoping to go tomorrow but I don't think it's going to happen!

5. After our party the other night, Ryan and I were exhausted. He literally passed out (due to tiredness!) on the floor right after our last guests left. Finley was tired too for some reason, I guess it's just hard being a dog.


5. Beth's continuing development is so cool to see unfold. She's big into wanting to do everything herself, and she says, "I, I, I" instead of "Me, me, me." I think it's a good step in the right direction, since the correct thing to say would be, "I want to do it." Or whatever it is she wants. ;-)

6. This is Ryan's graduation from my parents and me, we combined forces to get this for his new office. I think it turned out pretty awesome!


7. Today I went to a friend's house to meet up with some of my online friends, two of whom I met for the first time today. We had a potluck lunch and let the 12 kids run around, it was a lot of fun! We were late and had to leave early since Beth was cranky due to her ear infection, I really wish we could have stayed longer because these are all women I really love! Here is a picture of all of our kids. Beth's in the front because she was too cranky to join them on the sofa!

 
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